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 Post subject: Please pray for baby Faith
PostPosted: Sun Apr 06, 2008 7:51 pm 
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Joined: Thu Aug 30, 2007 2:36 am
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Location: Beaverton, Oregon
I'm very sorry I haven't been more active in this forum. As selfish as this sounds, my husband and I have been dealing with our own issues trying to conceive, and it has been very exhausting (financially, mentally, and physically running from one doctor to another). Recently it has become almost impossible to imagine being given the blessing of a child, and having to say goodbye. I love and miss you all dearly, and I look up to each and every one of you mommys.

This breaks my heart to pieces... but I feel I need to share. This is a blog written by my good friend's brother. They had a baby girl almost 8 weeks ago (she was born 12 weeks premature via emergency c-section due to cord being wrapped around her neck, therefore suffered from a lack of oxygen). They were hoping she didn't have severe brain damage and would recover, but it seems otherwise. Please pray for an easy passing... for baby Faith and her family.


This is a hard Blog to write, but I would rather write it, than have to repeat it to 100 people. I am sorry if this is kind of a shock, believe me, it was a shock to us as well.

Over the last six weeks the Doctors have been tracking Faith’s brain growth. Her Brain has not grown. On Monday the doctors told us that they were afraid that their worst fears were true, and that Faith’s Brain damage was very severe. They said that Faith most likely will never Walk, Talk, Eat, or Communicate. They were hoping to see some brain growth over the last six weeks, but there hasn’t been any worth noting. Although faith opens her eyse and looks around, she is still not crying. Although she is swalloing a little bit, she is still not sucking. All of these functions are basic baseline brain functions. The doctors believe that because Faith’s Brain is not growing, that some of these functions may never occur. Cami and I were very saddened by the news and we asked for the opinion of the Baby Brain Specialist.

The Baby Brain specialist came in this morning and talked to us about Faith’s Case. He said that he agreed that Faith would probably have very limited Brain Function and that she would not Sit, Walk, Talk, or Eat. He said that he thought she had a 1 in 5 chance of being able to communicate at all.

If we were to take faith home, she would require a couple of surgery’s to put in a stomach feeding tube. She would also most likely need many other surgeries over her lifetime. The doctors have also said that they are fairly certain that Faith will have cerebral palsy, which mean that her muscles would be tight and tense, and that certain stretching would be very painful. Even holding her might cause her pain. And if Faith were unable to communicate with us, we would not ever know if she was in pain or not.

Both Cami and I agree that we do not want Faith to live a bed ridden life where she cannot communicate with the outside world. Especially if that life is going to be very painful. We were hopeful that Faith’s brain would recover and grow, but the last six weeks indicate that that is not going happen. So Cami and I have made the decision to not continue Faith’s Artificial Care. Meaning that we have requested that the doctors remove Faith’s Breathing Help and her Feeding Tube. We will still continue to care for and love Faith by holding her and offering her food orally, but the truth is that Faith is not swallowing enough to be nourished orally. The end result is that Faith will most likely die. The doctors have said that this process could take anywhere from 4 hours to 10 days. (it is my prayer that Faith passes quickly without hunger and suffering, but either way, I think the outcome is more humane than a lifetime of pain and a vegatative state).

The next few days will be very hard, as Cami has decided that she wants to be with Faith all the way until the end. Cami will be staying at the Hospital with Faith, and I will be caring for Brenna and taking Brenna up for visits at least twice a day. (Please pray for Faith to pass quickly for Faith’s sake and for the Families sake.)

Before today, Brenna(3 and 1/2) did not know that Faith might die. She only knew that Faith was very sick. She asked me monday night why mommy was crying and I told her that "Mommy was worried about Faith becasue the Doctors said that Faith’s brain was not working and not allowing her to be able to think and move right). We still had not discussed with Brenna that Faith might die soon. On Tuesday night when Cami was putting Brenna to bed, Cami explained to Brenna that Mommy and Daddy had to go early to the hospital to talk to the doctors and that Grandpa was goint to watch Brenna when she woke up. Brenna said "Mommy can you tell the doctors something for me?", and Cami said "Sure...What". And Brenna clear as day said "Tell the doctors that if Faith is not going to get better, that I want them to let Faith go to Heaven. That way she can be with God, and when we get old and die, we can go to heaven too and we see baby Faith and bring her more milk (Everytime Cami goes to the hospital, she has to take the milk that she has pumped for Faith). Cami started crying and just hugged Brenna.

Today after making the decision to discontinue Faith’s Care, we sat Brenna down to explain to her about Faith. We told her that Baby Faith’s Brain was not growing and that she was really sick and that within a few days Baby Faith was going to Heaven. Brenna said "I know...I told you that last night". We were shocked that Brenna was not overly sad, and we asked her, Brenna do you know what that means. She said verbatim "When you say Baby Faith is going to heaven, you mean that she is gonna die, and go be with God. And then when we get old we can go to heaven too and see baby Faith. We can all see her..except Rocky and Bear ....Actually I think Rocky and Bear can go to heaven and see Faith too." (Rocky and Bear are our dogs). I then told Brenna, "I am going to be kinda sad when Faith goes to heaven, because I am gonna really miss her." Brenna then said "It’s OK Daddy, Baby Faith will be with God, and he will take care of her, and you can see her when you die and go to heaven." Cami and I were both floored by her strength.

I believe in God, and I believe in Heaven, but I have to admit, I am not to sure about all this reuniting stuff. The bible does not speak to much about how Families work in heaven. All it says is that Husbands and Wives will not be married in heaven like we think of it on earth. But I have faith that God has already thought of everything and that he knows what he is doing. So although I am very saddened by this decision, I also realize that this decision is the best one for Faith. I don’t know why Faith had to be sick, or why we had to go through these last 8 weeks, but I do trust that God is working through all of this and that when I do get to heaven all of this will make sense. The ironic thing is that my Daughter will have all of the answers before me.

Thank you all for your prayers and support. Even though this is one of the hardest decision that I will ever have to make (I hope), I feel a sense of peace about the path that we are taking. Knowing that God is in control. All of the love and support that we have recieved from everyone has made this process easier, and as we continue this Journey, I ask for your continued prayers for Faith. Please pray that she will not suffer.

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"Angels may not come when you call them, but they'll always be there when you need them."

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PostPosted: Sun Apr 06, 2008 10:01 pm 
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Joined: Sun Aug 26, 2007 10:23 pm
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Location: Oklahoma
Drea,
This story of Little Faith,well what can I say I just can't stop the tears.It is so sad when any infant and her parents go through something like this. I will be praying extra for Faith and her family.Little Faith will be forever in my heart.
love,hugs and prayers,
Barbara

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PostPosted: Mon Apr 07, 2008 10:35 am 
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Location: Texas
:cry: This is heartbreaking. I'll definitely pray. I don't know what else to say. I'll pray for you and your husband too Drea.
Hugs, Cindy

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PostPosted: Wed Apr 09, 2008 4:06 pm 
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I love you Drea.
Mama Lucy

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In loving memory of, Laura Dawn 2/26/68-7/19/07, my first born child, my daughter, my friend.
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PostPosted: Thu May 08, 2008 9:20 am 
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Location: Texas
Drea, do you know how baby Faith's parents are doing? I've had them in my heart and on my mind so much lately.
Hugs, Cindy

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B.J. you will always be my best Buddy in the Whole World. B.J., Wayne and Buck...forever loved and missed and never forgotten.
http://bobby-outlawii.last-memories.com
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PostPosted: Thu May 08, 2008 9:42 am 
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Praying for this family!

Tanya

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PostPosted: Thu May 08, 2008 11:22 am 
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(((HUGS & PRAYERS))) for baby Faith and family!
Hugs,
Lynda

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PostPosted: Thu May 08, 2008 11:28 pm 
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I'm sending so very much love, peace, and white light to this family. And tons of prayers for Faith not to suffer and for the whole family to be able to find the strength to accept that they made the right decision and find peace through, Brenna, God and each other. Sending lots of love, hugs and prayers. Please keep us updated as you can Drea! I'm also praying for you in your TTC journey as well as you bereavement journey.

Love,
Crystal

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