My son Joey was born on January 6, 2011 and just passed away May 13, 2011. He was born with a chromosomal defect called trisomy 18, also known as Edwards' Syndrome. We didn't know he was affected by it during my pregnancy, let alone have we ever heard of it. But I learned more about it in my son's four months of life than any mother should ever have to know. Trisomy is an extra chromosome in any set of chromosomes. Joey had it in the 18th set, and it caused many many complications to his heart, his kidneys, his bladder. I had to feed him through a feeding tube and we spent more time in the hospital with him than at home. To us he was perfect though, and he remained so calm and sweet despite everything he was going through. He still managed to smile even though all we could do sometimes was cry for him. I find comfort knowing he's free from all his pain and he's in God's loving arms. But I miss him so much it's tearing me up inside. It hurts to know there was nothing anyone could do to save him, his fate was sealed long before he was born. Our love just wasn't enough to keep him here. I still hear him at night and I would give anything to hold him in my arms again. How do I go on without him??
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